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Rank: Newbie
Groups: Registered
Joined: 7/18/2011
Posts: 1
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My name is Sue and I was diagnosed with Seronegative RA in September 2009. Still not under control and now waiting to go on Enbrel. I do not have classic RA symptons. My RA affects my chest joints mainly. I get pains in my chest, I get breathless very quickly and tire very easily. I feel very alone. My quality of life has really gone down hill and cannot come to terms with this invisable disease yet. I want the old Sue back............does anyone else suffer in this way with their RA. I would love to hear from you. I am 50yrs old and live in london. I was thinking of going to the Brentwood group as this is my nearest one and that is 40mins drive.
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Sue
Welcome to the forum, you will get much support and understanding here and you certainly will not feel alone with the RA. I can totally sympathise with feeling you have lost your life to the illness, I too was dx in Sept 09 with seronegative, I am in the process of going onto my second anti-tnf as I am not under control either. I have the inflammation in my joints, so cannot help you with the chest pains. It may be a good idea to get in touch with the help line, they are lovely and have helped me in the past, we all need lots of support at times.
I hope all goes well for you with the enbrel, keep posting, good to hear how you get on.
Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Sue,
Welcome to the forum! You will never feel alone now that you have found us.
Sorry to hear about your chest pains, I hope you can get on the Enbrel soon and it helps you.
I am 61, have had RA for 10 years and now on mtx and humira.
Looking forward to getting to know you.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Sue,
welcome aboard.
can sympathise as i'm also not under control since being diagnosed in June 2010. failed on Methotrexate and Hydroxy, now currently waiting to start on Humira,
if you feel able i would try and go back to your Group for extra support.
keep posting you will always find some one here to help,
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Hi Sue Welcome to the forum but sorry that you are suffering with your RA. You have found the right place for support. You never need to feel alone again. There are so many questions and answers on this forum that by the time you have finished wading through it, you will be an expert  . I am not sure any of us truly comes to terms with what has happened to our lives. It can change beyond recognition and in some cases overnight. I think you have to accept that you may not get your old life back but you have to learn a path which will lead you to a different life which can still be as rewarding. The biggest lesson I have learnt is pacing myself so that I do not feel so tired all the time. Jenni, a member on this site, has posted previously about the traffic light system and it would definitely be worth you reading about this. I was diagnosed in January 2009 and I still do not fully understand what is happening to me. Each day something else is added into the mix and it is the biggest rollercoaster I have ever been on. I do not get chest pain but I do get awful pains in my ribs which can make it uncomfortable when sitting. I think you need to talk to someone on a one-to-one. I believe the NRAS helpline is wonderful and they will put you in touch with someone who can discuss your worries with you. I also think it would be good if you could make it to your local RA meeting. It would be good to meet people who are in a similar position. Keep talking to us and no question is too silly or small and someone will always be able to answer you. Even if you just want a good moan, go ahead, as we all feel like that on occasions and it is cathartic in putting it down into words if nothing else. Take care Jackie xx
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Rank: Advanced Member  Groups: Registered
Joined: 3/28/2011 Posts: 956 Location: North Preston
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Hi Sue
Welcome to the forum. You will not regret it. I am Sheila aged 60. I was diagnosed 9 yars ago and am currently on mxt. Everyone on the forum is very helpful and sympathetic. We are all in it together and you can moan, complain, cry whatever you feel like doing. No-one judges or criticises. I think we all feel like you that this disease has robbed us of our former lives. It isn't all doom and gloom, when you are sorted with your meds you will certainly feel a lot better. I believe that you have to find a 'comforter' in your life to help you through the down days. I have my Faith and my antioxidants and they keep me going when things get tough. I hope you are feeling better soon. Please post again.
Sheila x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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Hello Sue
Welcome to NRAS! you need never feel alone here at least!
I have sero positive disease so quite different in that sense but I do have *unusual* RA presentation.
Lungs can be affected by RA but Im guessing if this was the case, they would have have told you about this in your appointments
you can also get pleuritic pain
also something called costocondritis.
Sometimes it hurts so much, people have mistaken it for a heart attack and been rushed into hospital and so I do know how much it can hurt!
I have had all these at times- its all to do with the immune attack on the body.
The grief process needs to happen and for me, I have a mini "moment" everytime something is imposed on me due to the RA!
I am Jenni btw, 35, married, 3 children and I have severe RA
Jenni
how to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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A Big welcome Sur from me. I am sorry that you have RA - but join the clan, you will be alone
anymore, This site and forum is great for advice, friends moans and so on.
I cannot help with your chest pains I am afraid. I was diagnosed late 2008 with also
seronegative RA. Have failed on DMARDS and started June 8th on TNF / Humira. Not
doing too well on that at the moment but am hoping for a magic wand to work for me
it is nealry 3 years and I am not regulated .
Good luck with enbrel and keep posting.
Rose
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Sue
Welcome from me also.
The forum is a great place for support, encouragement and advice, and many close and lasting friendships have been made through it.
I'm sorry your RA is not controlled as yet, but don't despair, there are lots of options for you to try.
I would recommend you go along to your local RA support group - after all you have nothing to loose and may find it very beneficial. I attend the Bolton Group and we have lots of fun and some wonderful, informative speakers - not to mention meals and outings.
I'm Jean - an oldie of 68, Mum to Lucy and gran to George (6) and Livvie (3) and married to my lovely Steve.
Look forward to getting to know you - do let us know how things go with the drugs.
Love Jean xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hello Sue, and a very warm welcome to the forum. It takes a very long time - if ever - to come to terms with a diagnosis of RA, so you are not alone, and everyone on the forum will help you : there is so much info and empathy on here, and you need never be afraid to "tell it how it is." I`m sorry about your chest pains, but hope when the RA is better controlled you will feel better. I`m Kathleen, diagnosed almost 6 years ago now, and currently on humira. Take care, Kathleen C x
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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Sue
Welcome from me Im Ceri 43 and live in South Wales, I was diagnosed in May 09 and still not controlled...Currently failing on infliximab and mtx inj 20mg.. Hoping to start enbrel or humira soon..
Its great that youve found this forum everyone is so supportive and knows exactly what you're going through! I know it takes a lot of coming to terms with Im nowhere near accepting it yet and really miss the old me!!
Keep posting Love Ceri x
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